I have worked in software development for medical records analysis (and following the letter of the law) so when I saw the NYT article I just about came unglued. There’s literally nothing that the MAGAVERSE morons don’t think is theirs to do whatever they want with. And as far as I can tell, there’s barely any science, or technology, or law, or customs of a civil society that they understand
I have some really cool radiologic records for myself, and especially my son. My son’s records could be an amazing teaching tool, so I have enrolled him in some university based clinical trials or informational trials to gain advanced knowledge of his rare (and rather extraordinarily stubborn) cancer. So his images and records have been sent all over the place. But every single share has been under extremely strict HIPAA regulations and other BMPs for medical communication. This is so unbelievably absurd i legitimately did not believe it at first. What in the actual fuck are people thinking?!
I just retired from a long-ish career in healthcare communications where I worked at a medium sized “health system” (buncha hospitals and clinics associated with a big university). When I saw that headline MY HAIR STOOD ON END.
As hospital workers, my colleagues and I lived in sheer terror of violating HIPAA. We trained on it every single year via our compliance training module. We were mostly terrified to take a work laptop home or to a meeting at an off-campus building, because if we lost the laptop and there was patient data on it we (and the university) were SCREWED.
And people are now just will-nilly sending their medical information to Grok!?!?!?!
I just can’t with the rampant stupidity. Anyone who did that and then loses their insurance and has to buy on the private market is now officially HOSED if they have a pre-existing condition. Not enough faces - not enough palms.
::choke!:: Because of course we can absolutely trust Elon Musk not to abuse our medical health data!
If I wasn't personally affected by this, I'd say "Yeah, LET Trump get rid of Obamacare, and those willfully STUPID people who voted for him find out what happens now that they've fucked around with America!" (Yeah, I've really gotten to hate my fellow Americans after this last election....)
Only problem with that is, they'll think it's somehow the Democrats' fault. In a way it IS because Obama's ACA is a weaksauce compromise on Bernie Sanders's "Medicare For All" which the REST of the developed world has, and the Dems didn't fight hard enough for that instead because Big Insurance and Big Pharma needs their sweet, sweet money gimmes—but it's still better than what Trump will bring us back to.
I’ve got a story. A friends medical record is recorded in a My Chart type situation and 98% of the healthcare being
used can be shared with other doctors in that system and others. Somewhere on there is a list of medications that my friend said one day was looking at her entries to see a dosage that she was just upped by her primary doctor. She discovered that her meds listed had a response in there that she was using a medication that is sometimes used by people who also suffer from herpes and it indicated that she used it for a past herpes infection for her pain. My friend has never had herpes and also another one of her medications was sometimes used for severe depression and it said she had a major depressive disorder. She called the office of her primary and asked why this was included when she had never had Herpes and she took the depression medicine to help her sleep because she suffered with insomnia. But never was diagnosed with depression much less for a major depressive order. Her primary told her it was probably just what is in the indications in general for those drugs. I told her that’s bullshit because these records follow you forever. It took her quite a few times at different doctors to get her record cleared of that. I cautioned her to check it every time you see a doctor because one of my groups is using recording from AI to record drs notes. Of course now most of the people that use these systems are aware of this my friend wonders if someone was doing it to her on purpose to her. I said it should be corrected anytime you see a doctor that uses that system. That’s scary to me that some douche screws around like that with peoples records. So beware. I’m going to ask about that next time I see the doctor who used AI for recording anything in my files. My friend said the nurse that helped her didn’t have a clue as to why it wasn’t there before and now suddenly it’s recorded as being used for a diagnosis that she never had. That’s scary
Well that is terrifying. Cool. I’m on a few meds that are being used for non traditional (but not off label) uses, one which is frequently used for seizures. No seizures or even suspected history of such. I already have enough preexisting conditions (Crohn’s being my worst one) that I’m an insurance liability if the ACA is repealed, so I don’t need any incorrect diagnostic information included in my reasons to not be insured.
Holy shit...I hadn't heard this. AI scares the hell outta me anyway...now this? I was concerned about its potential for trying to write copy...and the lack of governance/rukles, etc...but this is a bridge too far. It feels the world is collapsing underneath us.
This is why my husband and I don’t do the DNA tests for familial tracing. Obituaries routinely tell someone died of this or that. It’s nobody’s business. But Insurance companies love that information. Feeding AI is the worst version of it.
I refuse to do those DNAS tests. I recently read where one of the providers is going belly up, and the auction for the bankruptcy is ... (you guessed it) for the trove of DNA data.
Terrifying. And people both pay money and send them their genetic material for analysis.
I can’t imagine uploading my medical diagnostic tests to an AI, especially at the request of Muskrat; how stupid does one have to be to do this. I guess it proves one thing…. stupidity cannot be fixed.
I have worked in software development for medical records analysis (and following the letter of the law) so when I saw the NYT article I just about came unglued. There’s literally nothing that the MAGAVERSE morons don’t think is theirs to do whatever they want with. And as far as I can tell, there’s barely any science, or technology, or law, or customs of a civil society that they understand
I have some really cool radiologic records for myself, and especially my son. My son’s records could be an amazing teaching tool, so I have enrolled him in some university based clinical trials or informational trials to gain advanced knowledge of his rare (and rather extraordinarily stubborn) cancer. So his images and records have been sent all over the place. But every single share has been under extremely strict HIPAA regulations and other BMPs for medical communication. This is so unbelievably absurd i legitimately did not believe it at first. What in the actual fuck are people thinking?!
I just retired from a long-ish career in healthcare communications where I worked at a medium sized “health system” (buncha hospitals and clinics associated with a big university). When I saw that headline MY HAIR STOOD ON END.
As hospital workers, my colleagues and I lived in sheer terror of violating HIPAA. We trained on it every single year via our compliance training module. We were mostly terrified to take a work laptop home or to a meeting at an off-campus building, because if we lost the laptop and there was patient data on it we (and the university) were SCREWED.
And people are now just will-nilly sending their medical information to Grok!?!?!?!
I just can’t with the rampant stupidity. Anyone who did that and then loses their insurance and has to buy on the private market is now officially HOSED if they have a pre-existing condition. Not enough faces - not enough palms.
Ummm can we make agent orange’s info public now?
::choke!:: Because of course we can absolutely trust Elon Musk not to abuse our medical health data!
If I wasn't personally affected by this, I'd say "Yeah, LET Trump get rid of Obamacare, and those willfully STUPID people who voted for him find out what happens now that they've fucked around with America!" (Yeah, I've really gotten to hate my fellow Americans after this last election....)
Only problem with that is, they'll think it's somehow the Democrats' fault. In a way it IS because Obama's ACA is a weaksauce compromise on Bernie Sanders's "Medicare For All" which the REST of the developed world has, and the Dems didn't fight hard enough for that instead because Big Insurance and Big Pharma needs their sweet, sweet money gimmes—but it's still better than what Trump will bring us back to.
I’ve got a story. A friends medical record is recorded in a My Chart type situation and 98% of the healthcare being
used can be shared with other doctors in that system and others. Somewhere on there is a list of medications that my friend said one day was looking at her entries to see a dosage that she was just upped by her primary doctor. She discovered that her meds listed had a response in there that she was using a medication that is sometimes used by people who also suffer from herpes and it indicated that she used it for a past herpes infection for her pain. My friend has never had herpes and also another one of her medications was sometimes used for severe depression and it said she had a major depressive disorder. She called the office of her primary and asked why this was included when she had never had Herpes and she took the depression medicine to help her sleep because she suffered with insomnia. But never was diagnosed with depression much less for a major depressive order. Her primary told her it was probably just what is in the indications in general for those drugs. I told her that’s bullshit because these records follow you forever. It took her quite a few times at different doctors to get her record cleared of that. I cautioned her to check it every time you see a doctor because one of my groups is using recording from AI to record drs notes. Of course now most of the people that use these systems are aware of this my friend wonders if someone was doing it to her on purpose to her. I said it should be corrected anytime you see a doctor that uses that system. That’s scary to me that some douche screws around like that with peoples records. So beware. I’m going to ask about that next time I see the doctor who used AI for recording anything in my files. My friend said the nurse that helped her didn’t have a clue as to why it wasn’t there before and now suddenly it’s recorded as being used for a diagnosis that she never had. That’s scary
Horrifying but not surprising.
Well that is terrifying. Cool. I’m on a few meds that are being used for non traditional (but not off label) uses, one which is frequently used for seizures. No seizures or even suspected history of such. I already have enough preexisting conditions (Crohn’s being my worst one) that I’m an insurance liability if the ACA is repealed, so I don’t need any incorrect diagnostic information included in my reasons to not be insured.
That is frightening.
JFC, I won’t even share this on my iPhone. Let Elmo see it? Fuck that.
Holy shit...I hadn't heard this. AI scares the hell outta me anyway...now this? I was concerned about its potential for trying to write copy...and the lack of governance/rukles, etc...but this is a bridge too far. It feels the world is collapsing underneath us.
Idiots!
Do these idiots not understand how important it is to keep their personal medical information PRIVATE?!
https://www.hhs.gov/hipaa/for-professionals/privacy/laws-regulations/index.html
Dear Sweaty: reading your pieces always somehow, obscurely makes me feel a little safer. Don’t know why that is, but it is so. TY!
Wow, that is too much pressure ... 😂
You can handle it! 😘
This is why my husband and I don’t do the DNA tests for familial tracing. Obituaries routinely tell someone died of this or that. It’s nobody’s business. But Insurance companies love that information. Feeding AI is the worst version of it.
I refuse to do those DNAS tests. I recently read where one of the providers is going belly up, and the auction for the bankruptcy is ... (you guessed it) for the trove of DNA data.
Terrifying. And people both pay money and send them their genetic material for analysis.
Nuts.
Yep, it’s 23&Me. I saw an article and it tells you how to delete your data and close your account before anyone else gets it
See https://www.forbes.com/sites/larsdaniel/2024/10/15/how-to-permanently-delete-your-dna-data-from-23andme/ and https://www.consumerreports.org/health/health-privacy/how-to-delete-genetic-data-from-23andme-ancrestry-other-sites-a3585380508/
Alas, I am not sure that they ever really "delete" the data.
These Broligarchs are wizards of fuckery
Hmmm, true that.
I can’t imagine uploading my medical diagnostic tests to an AI, especially at the request of Muskrat; how stupid does one have to be to do this. I guess it proves one thing…. stupidity cannot be fixed.
The stupidity is terminal me thinks...